team ADDY

4H Leukodystrophy support, information & updates
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Addy has 4H leukodystrophy. Upon hearing those words, our world as we knew it, came crashing down. We had so many questions, there were so many unknowns, and in the forefront, we asked—what is Leukodystrophy and what does this mean for our girl?


Leukodystrophy is a group of conditions that affect the white matter of the brain. These diseases damage the myelin sheath, which surrounds and protects the nerve cells in the brain and spinal cord and speeds transmission of messages between cells.


Addy’s Oasis is a grass-roots project that built our daughter Addy an ‘Oasis’ of sorts in our yard. We are striving to make Addy’s life as enjoyable as possible. And we hope other kids come and enjoy her Oasis with her! 

What Next

Find out what cool things we've done for Addy so far plus find out what we have planned next.

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